I had the opportunity to meet Salvatore Cangelosi through our mutual friend, Deborah Quadrio, a former support teacher, volunteer in various associations in the sector, and independent researcher of inner technologies for psychophysical well-being. While finalizing the details of Salvatore's participation in the meeting between GMT™ and local operators, scheduled with Andrea Succi for September 21st in Castel di Lucio, Deborah's initial observation about the need for architectural barrier removal in the venue struck me like a punch to the stomach. It made me realize that when approaching the world of disability, nothing can be taken for granted, starting with the presence or absence of a ramp, which is essential to make a place accessible to a person with special needs. In this specific case, the Municipality of Castel di Lucio was equipped with a ramp, so Salvatore reached the council chamber safely, and no issues arose. But it's not always like that.

I start with this simple observation—which was a first lesson for me—to underscore the importance that must be given to those who live with disability, whether temporary or permanent, daily. For them, every moment of their day must be planned and managed according to methods and parameters that most of us able-bodied individuals are unaware of or ignore.


Understanding the Numbers of Disability and Accessible Tourism

ISTAT data for 2022 provides a useful overview: out of a total population of 59,065,000 inhabitants, people with severe disabilities numbered 2,921,000 (4.9%), while those with non-severe disabilities numbered 9,766,000 (16.5%). It should be noted that these data also included individuals with disabilities due to age, but it's reasonable to assume that at least 15% of the Italian population has accessibility needs, while tourists with disabilities are estimated to be around one billion worldwide and approximately 10 million in Italy. (Source: https://projectforall.net/turismo-accessibile-e-inclusivo-cose-e-cosa-fare/ - https://saravitali.com/turismo-accessibile-e-inclusivo-turismo-per-tutti/).

Stimulated by Salvatore's contributions during the meeting in Castel di Lucio, we decided to address, with him and through him, a topic that is very important to GMT™ Halaesa-Nebrodi in its project to propose the territory as a tourist destination: the delicate issue of accessible and inclusive tourism.


Salvatore, tell us about yourself and your story: your commitment to raising awareness about accessibility goes way back.

"That's right: mine is a neurodegenerative disease, SMA, which stands for Spinal Muscular Atrophy. It manifested itself from birth, progressively limiting me in my daily life and my interactions with the outside world. At the age of eighteen, I also lost the use of my hands, which further exacerbated my condition. However, I have always tried to transform my illness into a mission to raise awareness about the complex world of disability: in a word, I have never given up. For this reason, I have invested a lot of energy in associations—currently, I am very active in the Social Promotion Association NEHEMIA (here one of the latest events organized), whose President is Fabrizio Gandellini. I am a member of Famiglie SMA and have also had political experiences, having unsuccessfully run in the administrative elections for the municipality of Pollina, where I live. Furthermore, for two years, I was the provincial coordinator of a majority party.

Since I was a boy, in school, I fought, supported by my parents and friends, for the removal of architectural barriers in the school I attended. And now I can say, with satisfaction, that we have achieved a good result that benefits all people who, like me, have motor difficulties. But the first barrier I tried to break down was the mental barrier of able-bodied people who, unfortunately, looked at me and my world with condescension and almost detachment, underestimating my condition and not respecting my right to education, socialization, and culture. Therefore, my awareness-raising efforts have always been directed at both institutions and private individuals."


The Role of the State and the Meaning of Inclusion in Daily Life

The Italian Constitution, through Articles 2 and 3, enshrines the value and dignity of the person as guiding principles for legislators, and states that every individual must have equal opportunities to participate in the social, political, and economic life of the country. Based on your direct or indirect experience, how protected do you feel by the State? What impact do keywords like "inclusion," "integration," and "integration" have on daily life?

"The State, and institutions in general, have done a lot, but they still need to do much more. It's a matter of mental approach: disability should not be interpreted as a burden for the State, but rather as a richness. The State must stand by disabled people not only through legislative acts but, above all, through concrete actions: it has a duty to respect the dignity of all citizens, respecting diversity. Only then does the State fully fulfill its function. Interventions, not only economic, are needed to alleviate the enormous burden on families, integrating this effort with assistance where there are still too many shortcomings today."


A Day in Salvatore's Life

Your family, as you've just highlighted, represents the main place where the daily life of a person with special needs unfolds. Would you like to tell us about a typical day for you?

"First, I must say that, thanks to the constant support of my family and my many friends, I am deeply in love with life. But not everyone, unfortunately, is in my condition. I live every day to the fullest of my abilities thanks to my friends, social commitment, and work. Every day I get out of bed thanks to my family members who transmit strength and security to me, and I dedicate my mornings mainly to politics and my association. In the afternoon, I meet friends and often spend time with my grandchildren. My life, therefore, unfolds peacefully and is rich in experiences, but unfortunately, difficulty is always around the corner: from a sidewalk without a ramp to a pizzeria that doesn't have a bathroom suitable for my condition. I suffer from a severe motor limitation, but disability can also be visual, auditory, mental, and age-related: we should all do more to break down barriers and distances."


Accessible Tourism in Halaesa-Nebrodi: Expectations and Vision

It's clear that the degrees and types of disability are so numerous and varied that it would be impossible to encompass and analyze them in a simple interview. So, let's imagine you wanted to spend a holiday in Halaesa-Nebrodi: what would you expect to find in terms of inclusive hospitality and access to services?

"Accessible tourism is a great economic resource and also measures how sensitive society is to our issues. We need to work on mindsets and daily life: too often, I've found myself having to give up or change a vacation because the facility, restaurant, or beach wasn't suitable for my needs. That's not right! Limitations shouldn't exist, or at least, efforts to accommodate everyone, including disabled people, should be expanded. Private entities, for example, shouldn't feel obligated by one law or another to adapt their facilities with compliant bathrooms, but should feel a duty to act autonomously, out of civic sense and to provide a service to the community. In this perspective, I also want to emphasize the importance that each individual has in society, especially when projects, visions, and operations are shared, creating a network: one must start with the willingness to accept 'the other' without prejudice or distrust of any kind; one must know how to listen to break down all barriers, physical and mental. In this sense, being part of a community that works in a shared way brings great added value to each of our initiatives. I am pleased to find this principle in the concept of Hospitality Community that inspires the work and mission of GMT™ Halaesa-Nebrodi."


Salvatore's Role in the Project

The Halaesa-Nebrodi project revolves around the concept of a Host Community, therefore people represent its foundational element as they are called to welcome, participate, and share. What role would you imagine playing as an active part of the project itself?

"I would be very happy to be an active part of the Halaesa-Nebrodi project because I could, with my direct experience, guide certain choices and specific interventions. Not because I have special intellectual gifts, but simply because, by firsthand experiencing the needs of people with difficulties, I could be valuable support in making our places more accessible and inclusive. For example, rail accessibility should be significantly improved. I personally observed that on a train to Cefalù, the space for disabled people had been simply and hastily created by removing some normal seats, leaving an empty area to place a wheelchair, without any fastening or safety system. Obviously, I reported the incident and, despite perfunctory apologies, nothing has changed three years later.

But I don't want to end this interview on a negative note. Instead, I want to take this opportunity to say that change is possible, provided each of us becomes fully aware of the problem and tackles it with consciousness and determination. I'm in."


We are too, Salvatore. Thank you.